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by Alice Wexler, 288 pp., Yale University Press, 2008, $30
In The Woman Who Walked to the Sea: Huntington's and the Making of a Genetic Disease, Alice Wexler provides an insightful analysis of Huntington disease from a social and historical perspective. What makes this book special is how Wexler uses historical resources (many analyzed and discussed for the first time) to understand how this disease came to be understood (or misunderstood), and how those affected were considered and treated (or mistreated) by others within their own communities. She does an excellent job of illuminating the “lived experience” of those with Huntington disease as a function of time and place, and the ways in which medicine and science were used …
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