RT期刊文章SR电子T1框架推进保健计划在帕金森病摩根富林明神经学神经学乔FD Lippincott Williams &威尔金斯SP e2571 OP e2579 10.1212首页 / WNL。92签证官0000000000007552 22 A1希拉里·d·亮度A1莎拉·r·乔丹A1 Adreanne Brungardt A1罗马Ayele A1玛雅Katz A1詹尼斯·m·Miyasaki A1安妮霍尔A1杰奎琳·琼斯A1 Benzi克鲁格2019年UL //www.ez-admanager.com/content/92/22/e2571.abstract AB目标推进保健计划(ACP)是一个核首页心质量测量照顾患有帕金森病(PD)和没有最佳实践标准如何ACP合并到PD治疗。这项研究描述了病人和护理伙伴对ACP告知病人的角度,为临床护理和护理partner-centered框架。这是一个定性的描述性研究方法30例PD患者和30保健合作伙伴在一个多点,随机临床试验neuropalliative保健标准治疗相比。在机场核心计划参与者单独采访的观点,包括之前和现在的经历,ACP壁垒,为融入护理和建议。面试进行了分析使用主题分析来识别关键的主题。结果四个主题说明病人和护理伙伴认为ACP临床护理的一部分:(1)个人ACP PD的背景下不同的定义;(2)病人、关系和卫生保健系统障碍存在从事机场核心计划;(3)保健合作伙伴在ACP发挥积极作用;(4)姑息治疗方法积极影响机场核心计划。 Taken together, the themes support clinician initiation of ACP discussions and interdisciplinary approaches to help patients and care partners overcome barriers to ACP.Conclusions ACP in PD may be influenced by patient and care partner perceptions and misperceptions, symptoms of PD (e.g., apathy, cognitive dysfunction, disease severity), and models of clinical care. Optimal engagement of patients with PD and care partners in ACP should proactively address misperceptions of ACP and utilize clinic teams and workflow routines to incorporate ACP into regular care.ACP=advance care planning; PC=palliative care; PD=Parkinson disease; PDPFAC=Parkinson's Disease Patient and Family Advisory Council