@article {Lume2571作者={希拉里·d·亮度和莎拉·r·约旦和Adreanne Brungardt和罗马Ayele玛雅Katz和詹尼斯·m·Miyasaki安妮霍尔和杰奎琳·琼斯和Benzi克鲁格},title ={框架推进保健计划在帕金森病},体积={92}={22},页面= {e2571——e2579} = {2019}, doi = {10.1212 / WNL。出版商0000000000007552}= {Wolters Kluwer健康,公司代表美国神经病学学会},文摘={目的推进保健计划(ACP)是一个核心质量测量照顾患有帕金森病(PD)和没有最佳首页实践标准如何ACP合并到PD治疗。这项研究描述了病人和护理伙伴对ACP告知病人的角度,为临床护理和护理partner-centered框架。这是一个定性的描述性研究方法30例PD患者和30保健合作伙伴在一个多点,随机临床试验neuropalliative保健标准治疗相比。在机场核心计划参与者单独采访的观点,包括之前和现在的经历,ACP壁垒,为融入护理和建议。面试进行了分析使用主题分析来识别关键的主题。结果四个主题说明病人和护理伙伴认为ACP临床护理的一部分:(1)个人ACP PD的背景下不同的定义;(2)病人、关系和卫生保健系统障碍存在从事机场核心计划;(3)保健合作伙伴在ACP发挥积极作用;(4)姑息治疗方法积极影响机场核心计划。综上所述,ACP的主题支持临床医生开始讨论和跨学科的方法来帮助病人和护理伙伴ACP克服障碍。Conclusions ACP in PD may be influenced by patient and care partner perceptions and misperceptions, symptoms of PD (e.g., apathy, cognitive dysfunction, disease severity), and models of clinical care. Optimal engagement of patients with PD and care partners in ACP should proactively address misperceptions of ACP and utilize clinic teams and workflow routines to incorporate ACP into regular care.ACP=advance care planning; PC=palliative care; PD=Parkinson disease; PDPFAC=Parkinson{\textquoteright}s Disease Patient and Family Advisory Council}, issn = {0028-3878}, URL = {//www.ez-admanager.com/content/92/22/e2571}, eprint = {//www.ez-admanager.com/content/92/22/e2571.full.pdf}, journal = {Neurology} }